Help Us Bring Hope to Families Living with Duchenne

In August 2022, our world shifted forever when our joyful, curious, and kind-hearted son David was diagnosed with Duchenne Muscular Dystrophy (DMD) - a rare genetic disorder affecting approximately 1 in every 3,500 boys. The diagnosis was devastating, but our journey has been one of learning, resilience, and unwavering hope.

Duchenne is more than a medical condition—it’s a daily challenge that affects families emotionally, physically, and financially. From costly medications and adaptive equipment to travel for clinical trials, funding educational and daily living support and home modifications, the burden can be overwhelming. And yet, every child deserves to live with dignity, joy, and opportunity—and every parent deserves to witness that.

Since launching Find Your David, we’ve been humbled by the generosity of our community. Over the past four holiday seasons, your support has helped us raise over $400,000, directly impacting families living with Duchenne. Together, we’ve:

• Delivered nearly 400 holiday gift cards to families in need

• Funded home accessibility upgrades

• Supported clinical trial travel costs

• Sponsored attendance at the PPMD annual conference

• Backed JB’s Keys to DMD and their Bruins and adaptive ski programs

• Contributed a $30,000 grant toward cardiac research in Duchenne

• Launched an entrepreneurship program for those living with DMD

• Launched a program intended to advance STEM skills in young men and boys living with DMD

• Purchased a new TetraSki for Mount Sunapee’s adaptive ski program (NEHSA)

We invite you to be part of this journey. Your support brings joy, relief, and opportunity to families who need it most. Let’s make this holiday season one of hope, progress, and connection.

Together, we can make a meaningful difference.